Saturday, July 14, 2012

Simply Indy, Simply AMC, Simply Us...

After 28 years of living is this body, someone contacted me and asked if I could meet them for an interview. I would have never expected that this was going to change my life the way it did.
Two weeks after the TV program I was booking the flights to go to the AMC support annual Conference.
Source: http://www.amcsupport.org/
In the previous weeks I had started this blog and I thought that this conference could be useful, not just for me, but for the people that reads it from all over the world.
So there I was packing, and thinking one more time, I have the best mum in the whole world. As she just had come back from a long trip to Europe and I just had to say the words: I need this. And there, we were going to INDY! 

INDY Here we are!
So after a few days in Miami, We finally flew to Indy, in the plane I just felt anxious, not just for the the fact the we where thousands of miles from the ground - which always gives me that feeling-  but for the fact that I didn't know what to expect.
Arrived safe and happy - always a bonus- and I refused to take a Taxi, I just love experiencing it all. We took the local bus to the town center. The funny thing is, as all my friends always say, I don't do the hard work. Of course I always think I'm the strongest woman in the planet and that a 30 kilos bag won't get in the way of  how I like doing things and as always, it does. So there is my poor mother dragging two big bags around Indy in the summer heat, trying to convince me not get run over.


The moment of truth 
At the reception desk I found a poster welcoming the AMC family, and my mind just concentrating on how nice that was completely missed the fact that close by there was group of AMCers looking at me. 
My mum said: "Look! your friends." laughing nervously. As I proceeded to turn around my heart pumped as it did on my first kiss. I walked towards them and said a shy "Hello..." with a big happy smile in my face. Thankfully Shushana (I call my monther that way, her name is Susie) took a photo of that exact moment.
  
 After a quick run to the hotel room (I didn't want to miss a second of it) we made it to the second floor where every one was meeting. That second I recognized a familiar face, it was Scarman, a cool man with AMC that a  I had been following for a couple of weeks on the internet, we shared a couple of messages backwards and forwards before the conference, but I wasn't expecting him to remember 
My Favorite Ward
me or much less my name. I was very wrong,
he did remember and greeted me by name.
He was so caring for everyone around, every kid wanted a photo with him. That man has charm...
He introduced me to some of the people around
and after we went to the registration.
While I was there, I really didn't know where to look.
Everyone was so different and so similar at the
same time. I was loving it!

 



Walking around trying to soak it all in, we heard some cheers, we rushed to se what was going on and so we found lovely Tracey showing the girls her last discovery:
HOW TO DO YOUR OWN PONYTAIL! This is taken as granted by most women, but for us this was the end of our mornings full of, "would you do my hair up?" this was like the best news of the year!

The ponytail session


The next hours where just so overwhelming, I noticed my mother crying in some phone calls with people back home. I pretend as I didn't realized because if I did, I wouldn't stop crying, not because it was sad, on contraire,  it was so nice! I never felt the need to even google up my condition before. I always had friends, all kinds of friends who I related to, but this where relations of music, sports, hobbies, etc. But I never got to see my self in a live mirror. As I said, we all where very different but so similar at the same time, that now after 28 years I knew how I looked in others peoples eyes.

That same night I re-meet Dale, a wonderful man full of live that hasn't let AMC get in his way and what he wants in life. After a long talk I realized somethings had to change in my life. Of course this is hard topic for any woman in the world... But the biggest change I have to make is my weight and as Dale said that night what the doctors and Shushana have been saying for the last couple of years. 
"We don't have the joints that other people have",  "We  have to put 50% more effort to achieve daily tasks", "Imagine if your legs had 15 pounds less to battle with" he said. It is different hearing it from someone that has the same barriers to cross that you have every day. So here we go.
He showed me as well something amazing that I always wanted to do. How he rides a Bike.


We are going to ride together in Vegas Baby!


The next couple of days where just a roller coaster of emotions. As so many things where shared around the sessions and social times, things that you thought you where the only one thinking about or going through them. This was a life changing experience for me and I would highly recommend everyone with AMC   trying to make it to the next one. This is such a wonderful support group founded by a amazing woman, mother of a AMCer, Ani Samargian.  And as she says she couldn't do this with out great work of the board of directors.
You rock Ani!

The board of Directors




All I want to do now is thank all the wonderful people I met, you guys really are awesome in you own ways. From Sean and his not dancing all the way to Phill and his wonderful voice and guitar playing... All the smiles shared with all the sweet girls. 
Amanda, Ciana, Shelby, Whitney, Alejandra, tracey, Court, Rebecca you girls rocked my world. 
Theresa and her strength. Chris and his wonderful smile and his brilliant art. Michelle proving me I can be a fantastic mother. Donna reminding me what I want for life. Kids just being kids and showing us friendship is most important thing in life.
And last but definitely not least Matt you know how I feel you about and how wonderful it was meeting you. 
And the Most important thank you of my life, Thank You Shushana for been there with me every time.




 Love you all and SEE YOU IN VEGAS!!!!

8 comments:

  1. Replies
    1. Dear Coso (Cynthia) Thank you for your comment you know you are a big part of this blog. Thank you for all your help!

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  2. thank you for posting your blog. We attended the AMC Conference last year in Kansas City and it was wonderful. Our grandson has AMC. We hope to meet you next year in Las Vegas!
    Kathy

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    1. Dear Kathy,
      Thank you for reading me. I loved the conference and I definitely will be in Vegas next year and is going to be great to meet you.

      Love,

      Misha

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  3. I saw you at the convention but didn't have a chance to meet you! My son is 5 and is the AMC'er in our family. It was SO great to have you and everyone else from outside the US.

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    Replies
    1. Dear Besty,

      We wanted to get to know everyone, but the time so short... ( we but have next year) ;)
      Thank you for reading me and lets keep in touch!

      Love,

      Misha

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  4. Hi Misha! Hi Susie! Your blog is amazing, inspiring and humbling! It was so awesome to meet You and your Mother! ...you are both wonderful ladies, full of life and adventure! I'm looking forward to seeing you both in Las Vegas next year! ...and since you put it in writing for the WHOLE WORLD to see, I'm gonna hold you to your statement, "We are going to ride together in Vegas Baby!"
    Warmest Regards & a Great Big "Pod" Hug!!!
    Dale Wilson

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    Replies
    1. Dale!
      Thank you for every thing, you are a big part of the great time we had in Indy. And we are looking forward to see you again... In Vegas Baby! hahaha.

      Lets keep in touch , Should be sending you a video of me riding ;)

      Love,

      Misha

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